Welcome to, “The Swell Diaries,” and the official blogging and vlogging website for idiopathic angioedema. Here, we will share stories from, “Life Without A Fork’s,” Founder and leading angioedema advocate, Vanessa Williams, both in written and film, as she is involuntarily living, “The Swell Life!”
We are the 80 percent! Can you see us, now?!
BLOGGING IT OUT |
11.10.17 | PURE GOLD — PRESCRIPTION BENEDRYL IS THE WAY TO GO!
11.03.17 | RAINBOWS AND MOVIE MAKING, MAGIC AND POTS OF GOLD — OH MY!
Following my visit with a new #IdiopathicAngioedema specialist at UCLA, Katya and I made it out to #SONYpictures in Culver City, yesterday. They had this awesome giant rainbow on the studio lot and on the drive home we got to see a spectacular view of the real deal.
I do believe there’s a pot of gold for each and everyone of us at the end of those rainbows so, by all means, and I’m serious about this one guys, #KEEPGOING!!! 😉
Hope everyone is looking forward to a healthful, beautiful, bright, and simply magical rest of your lives! As I continue to strive towards immortality, I know I sure am!
11.01.17 | THESE ABDOMINAL SWELLS BE LIKE…
- Having abdominal swells can be the worst of all our #angioedema swell patterns–they are uncomfortable–even painful at times, can last up to two or more weeks per instance and, initiate the longest cycle of bowel movements to conclude that particular round of swelling.
- And so, it always ends up in the toilet, kind of like the first two days of your menstrual cycle (if you’re a woman–you know what I mean), the outpouring of poop from the body on fleek!
- So, try explaining why you have to go to the bathroom so much to someone in who’s home you are a guest and they want to know why you flush so much (this was me some months ago in Los Angeles), or to someone who shouldn’t be (I mean, really, should anyone do this?!), but does, count how much toilet paper you use each and every time you go! (Dem’ City Folk, tho!) Ugh!!!!
- It’s challenging enough to deal with your own body’s weirdness in deciding to recycle, revamp and revive these mast cell activated swells, at will, it’s just too much to have to include so many other people in on such a personal, medically driven ritual, especially when you aren’t feeling so well in the first place.
- Beyond looking forward to that #SwellFree life–truly desire it for us all–as I seek full recovery in health and strive for the inevitable option for immortality to come.
09.20.17 | CHRONIC RECURRING IDIOPATHIC ANGIOEDEMA — THE TOLL IT HAS TAKEN ON MY LIFE | RANDOM…
- I have a celebrity friend flying in from New York who invited me to a business meeting at the Cheesecake Factory–he just texted me to apologize for inviting me to the Cheesecake Factory
- I have eaten only tofu and corn for nearly six months–it’s what I know to be safe
- I eat one meal a day–dinner
- I am always hungry
- The nausea is all day everyday and one of the worst feelings like ever
- The headaches started coming about two months ago–they are overbearing and I can’t even sleep through them
- Everything is so heavy to me, my iPhone feels like it has the weight of a laptop and my laptop feels as weighty as a 60″ television
- I am always swollen–lips, legs, hands, feet, belly
- I wake up with huge lips and lots of swelling everyday
- I may have to use my walker on the same day that I am able to go bike riding
- I have a walker
- I am always sleepy
- I am always tired
- I am so tired of being and feeling sick everyday that I don’t really want to talk about it anymore–I suffer in quiet and work toward achieving my goals
- My goal is to share the documentary feature film, “Life Without A Fork,” with the world and find a way to survive IA
03.20.17 | PEACE. BE STILL.
- I have had a great deal of people openly express the new energy that has come with this New Year.
- Within the first 25 days of the year alone so many things, major to the world at large, has transpired. There has been an inauguration of a new president of the United States.
- A, “Million Woman’s March,” that brought with the energy needed for the newer female leaders to come, that far exceeded any other such rally in history—thereby, almost effortlessly, becoming an event to write into her-story, unto itself.
- A unique Summer Solstice, lunar eclipses, solar eclipses, meteor showers and many other world-altering events that have happened to shape my personal journey.
- I have become a world-class presence with a force of peace and love that I have not been able to restrict to any one person, place or agenda.
- A global advocate for the rare condition, idiopathic angioedema (as well as the best in mental health), I have already taken my outreach throughout the Hollywood, San Diego, Orange County, Long Beach, and Los Angeles regions of Southern California as well as the five Burroughs of New York City, and have been fortunate enough to touch many more lives and give hope to countless new people surviving this life threatening condition.
- More people have been able to find us on social media and I have made myself personally available to countless others both in person and by telephone.
- I love what I do and the opportunities I am afforded with helping even one more person get through a day with angioedema, mast cell activation disorders, urticaria or any other chronic condition.
- Being challenged with idiopathic angioedema, having more near death experiences than I can remember, swelling and not being able to tolerate foods for periods that would have defeated even the strongest, even rugged of men, becoming disabled and unable to earn money for food for myself or my child, these things were necessary for me to become this woman with the amazing new abilities I now feel I have and is what will drive me and strengthen my ways of caring for others as we go into 2018 and beyond. #TheFutureIsNow!
VLOGGING IT IN |
To help keep our global outreach efforts free we ask that you donate to our ongoing gofundme.com campaign below and most sincerely hope that your swells will forever be minimal at worst.
Life Without A Fork Is A Not-for-Profit Corporation
As always, we appreciate your ongoing support.
Disclaimer: Our page is a community service to our users. The information provided on this site is meant for informational purposes only. LifeWithoutAFork.com, Inc., The Idiopathic Angioedema Global Advocacy Group, and its employees and affiliates are not responsible for the accuracy of any information herein contained. You are encouraged to validate any information we provide with proper professional consultation.