Welcome to, Life Without A Fork’s, funding initiative for families working to survive, “The Swell Life!”
This connect point has been set up so that angioedema sufferers who are seeking financial assistance may have a communal place to share with the world the unique challenges many of us face when it comes to living with such a debilitating condition while still trying to maintain shelter, pay bills, buy food, and afford medications.
We ask that you please choose a cause, or three…smiles…and do what you can to help. You should know, the stories shared here are much more of an overview than the actual depth of struggle and trauma in which these people live! You’d be absolutely rattled if we gave you the full Monte and believe you me, it’s a heart-wrenching thing to witness.
Thanks so much, in advance!
~The Life Without A Fork and Idiopathic Angioedema Advocacy Groups.
Jonelle Spencer: Recurring Idiopathic Angioedema | Treating with Expensive Hereditary Angioedema Medications
“I am first and foremost a single mom of 15 years. The father has not ever seen her in all of these years. This being said Having this disease is very frightening to my daughter. I’ve always worked full time and was in college for nursing. Then to go on for my PA. I’m unable to work any more than 3-4 hours a day.
I have idiopathic Angioedema with anaphylaxis. Mine in non histamine responsive. Which means epi pens don’t work. I basically swell up everywhere. But the emergency ones are in my face and mouth. Currently I’m being treated with Hereditary Angioedema meds which are about 12k a dose. Both are rare. Even more rare mine is this bad. I hurt and tire easy. And when I’m swelling it doubles and I can’t work when I am, well because this can take my life very easy. In the last month it’s become worse and more life threatening”…Click below to learn more about Jonelle Spencer’s story.
Annie Williamsi: In Crises with Hereditary Angioedema, PCOS, PTSD, Thyroid Cancer, Bi-Polarism, and more.
“Please join us in our efforts to provide hope and healing for my awesome sister, Annie Williams. She has been dealing with ongoing health issues for the last 10 years, and she is only 23.
Her diagnoses follow in chronological order–
PCOS- Polycystic Ovarian Syndrome (Diagnosed Oct, 2011, after 4 years of searching for answers to her ever worsening symptoms)
Bi Polar Disorder — (Misdiagnosed as depression while on an LDS Mission and was treated with multiple ‘wrong’ medications for over a year)
PTSD (Due to sexual assault which occurred three weeks after returning home from her mission. She also suffers from emotional, physical, and mental trauma caused by anti-psychotic medications that were prescribed for her and were taken as directed)
Hereditary Angioedema (A rare, incurable auto immune disease that creates full body hives and swelling of hands, feet, face, and throat which can be fatal, which was diagnosed about 2 years ago)
Thyroid cancer – (was discovered Feb 2016, and in April 2016 her thyroid was completely surgically removed, and was discovered to have metastasized and involved 13 cancerous lymph nodes after 45 lymph nodes were removed)
After her surgery, Annie was unable to tolerate the prep for radio active iodine treatment, which required her to discontinue her natural medications (including Q96) that effectively treat her BiPolar Disorder and PTSD, and she was left extremely weak, sick, unable to eat, and suicidal.
After years of horrible side effects from pharmaceutical medications (which she has realized her body can not tolerate), and serious discouragement from the ‘doctor’ run around, she has research and learned much about her conditions and made the decision to pursue Natural and Alternative treatments for her cancer, and other health issues.
Although Annie has had jobs that she absolutely loves, she has often been unable to work due to chronic symptoms. Her wonderful employer, Barnes & Noble, and her managers there, have been extremely gracious, understanding, and loving to her through it all. She has lost approximately 50lbs since her Cancer surgery, and is struggling to survive day to day, but has much hope due to her fabulous boyfriend, loving & supportive family, and especially her amazing new Doctors.
Until last month, Annie has been covered by our parents’ insurance, but that has expired and she is currently without coverage. Although she is pursuing other insurance options, she is in immediate need of updated tests and Cancer screening, as well as the costs of alternative cancer treatments and lifestyle (extreme clean eating and cancer killing diet, multiple supplements, iv’s, injections, tests, medications, and office treatments). She has a follow-up appointment with her surgeon at Huntsman’s Cancer Institute and ongoing appointments with her Naturopathic Physician and Nutritionist, these expenses continue to add up along with debt from several years of medical bills that she and our parents are attempting to pay off.
Through the years my parents have been paying for many of her needs but have recently moved home from a traveling job and started a new business (so they can be home), therefore funds are limited at this time. Any contributions to this gofundme account will be greatly appreciated. Thank you all for being such amazing family, friends, acquaintances, and strangers.
Help spread the word!” ~ Peggy Smith
My Life with David And Noah: The Karen Lorenita Project:
“Hi. It truly means the world to me that you are willing to share the link to help us. We are really going trough a tough time and sadly my #HAE is getting worse day-by-day. I also started having seizures last month and my insurance won’t pay for all the tests I need to get done nor for some of the specialists I have to see. I also have to pay out of pocket for my Cynrize since insurance only covers half that cost. We lost our home last year and last week we lost our storage unit cause we couldn’t come up with the money to pay for it and we had everything in there. ;( All we want is to be able to give our boys a place to call home … but with my husband being the only one working and paying for everything it is just impossible for us to come up with the money we need for a deposit on a apartment and to buy everything we lost in the storage unit.
Once again, thank you sooooo much for doing me the favor of sharing this!”
Thank you for remembering to donate directly to Life Without A Fork so that we may be able to help so many others in need!
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